Tuesday, December 14, 2010

Dementia: Coping with the Change


This is a beautiful film. Nic Askew and his Soul Biographies blow me away time and time again. "A Life Beyond" is so relevant to the changes we are coping with today. I may even say it showcases humanity at its finest. It is short, 7 minutes, and well worth your time. Click, watch, and listen. Be prepared for a transforming perspective.

I speak to this concept quite often, to families, therapists, nurses, any caregiver. A change of outlook can make everything we do when caring for someone with dementia much different, less burdensome, more joyful, and the shift happens not just for us but also for the person we love who has this horrible disease.

One of my favorite phrases about the work I do is "my patients give me so much more than I could ever give them". So true when the viewpoint is one of an exchange with this person you hold dear and not just the load of care-taking. This is a valuable angle that should be shared.

Thank you to Soul Biographies and Nic Askew for such meaningful films.

Saturday, December 11, 2010

Keeping the Memories

Today will be a day filled with a riot of reminiscing. I'm with my family in Virginia, "The Cooks" for our holiday celebration. This will be a few hours together with my mother, stepfather, aunts, uncles, and cousins. All of us together for a day. We really don't have any elderly left in the family, but the memories of the are abundant. This year I am going with the flow, but throughout the next year I am going to send some time capturing a piece of this family's story. It's too important to lose.

Most of the time is spent during our gatherings is for visiting, talking about our lives today, remembering the past, and what amazing memories they are. I love hearing Mom talk about growing up with 10 other siblings. When she gets together with all of the brothers and sisters it's like they speak a different language. They have code talk, and these key phrases are hilarious to them, but indecipherable to others. Sometimes they explain the story behind the phrase and it all makes sense then. This was a huge part of my childhood, and I wonder if the next generation of kids in our family will know any of the "Cookisms" because it doesn't really translate without the entire story told. I am thinking I'll capture these tales.

I know all families have their own allegory, and I see no better way to honor our elders than to acknowledge the importance of that history and record their narrative. Everyone should have the chance for future generations to hear their own "familyisms". It is so important that we collect memories that make us laugh, or smiles, or cry, or even take us back to that special moment. Let's commemorate!

Will you have some special time with your loved ones this season? I am sure remembering will be a part of the time sent with your loved ones. So rise to the challenge. Use these tools, make he memories last beyond this lifetime.
To converse and record with the person with memory loss...


For anyone...


Tuesday, December 7, 2010

Aging or Living

A few hours ago I spoke with a friend on the phone. We had a great conversation about healthy living, our belief systems about our bodies, our abilities at any age, and the power our minds hold over changing the way we live.

Somehow our society cultivates a belief that once we reach a certain age, our capabilities diminish. Mental capacity, physical agility, as we age, everything about our being changes. Working in a medical setting I know that some of this is true, but I also realize that we are largely responsible for the vitality or arrest of ourselves. Who makes these rules anyway? I know there is some science to back up symptoms of aging. On the other hand, I have encountered 70 year olds who are very fit, and 30 year olds who are on the verge of heart failure. Honestly, I live a much healthier life now than I did at 21. There are exceptions to every rule. So, who are the anomalies and what make them go against the norm?

I saw a patient in therapy a couple of years ago who was in her 90s. She could no longer swallow. She was weak, has been ill, had a feeding tube, and stayed in bed most of the day. She was asking for water, food, typical things that would be missed if after nearly a century they were suddenly taken away. I was the swallowing specialist; so, what could it hurt if I tried? Her family had no hope, but this woman told me from day one that she was sure she could eat and drink if someone would just give her a chance. Disheartened by her horrible quality of life I decided to give therapy a shot. We worked together, she began drinking water again, then food came. She refused to accept that 90 was the age for her to give up. She believed that she could do it again, and with a little help she did.

Wouldn't it be nice if we could reframe our view of what aging should be? Should it include losing something as basic as food and water? Wouldn't it be nice if everyone had the philosophy of being able to do anything you set your mind to. We could look at each year of life as an opportunity to outdo our previous selves. I would love to see us serve as inspiration to those aging around us to thrive, and live their most fulfilled life right now. Seriously, we aren't kidding anyone. We are all "aging." Maybe it would be better stated as we are all "living". It is really that simple.

If we believe we are getting older then guess what, old it is. If we hold the perception that our bodies, our brains are breaking down then guess what happens. Just like my patient who knew that path was not the one for her. She believed she could change direction, so her last years were more pleasant and fulfilling. We can do the same. Imagine if every person on this Earth chose to "live" instead of "age" what a different world it could be. Do we simply grow old, or do we live amazing adventures and make the most of each day, month, year, decade? They pass by quickly. You make the choice.

Wednesday, December 1, 2010

Travel Time

Airplanes, airports, flight schedules, delays, and diversions; they all make for interesting traveling. As I sat in the airport last night I watched an elderly couple make their way through the madness.

We enter the security checkpoint at approximately the same time. I am in no rush, so behind the couple I stay, watching as they fumble around with their bags. I have it down to a science now, so it baffles me when others enter with no clue. The wife removes liquids and proceeds to dig through her purse taking out some makeup items. She can't maneuver her luggage. Pulling the bag is ok, but when it's time to lift, her companion takes over. Good thing he's there with the muscle I think to myself. The husband removes some items, and to his dismay he has to ditch the Sam's Club size Barbasol. Then their bags go through the scanner, they move one duffle type bag forward and back, repeat, call another agent over to look. Coins are the culprit. One gallon size zip-lock storage bag and one quart size, filled to the brim with coins. Off to the corner searching station they go and I lose sight for a moment, but can hear the man exclaiming that he can't possibly comprehend why coins pose a problem. Ok, so now I'm thinking that confusion with the whole security process could happen to anyone, but I am keeping my eyes and ears peeled in case they run into problems. These seniors aren't too savvy in the traveling department.

Delays and cancellations keep arising. I see the couple sitting at another gate. By this time the lady is sitting, her husband is pacing. He walks to the monitors, back to his wife, and to the monitors again. There are no attendants at the counter. Status change announcements blare over the intercom. Out of desperation the man walks my direction. I suppose I appear elderly friendly. He can't understand what is happening or what's going to come of his itinerary. They need to get to a larger airport and with the delays he won't make his connection. So he shows me the tickets, and when I begin to explain he asks that I talk to his wife as well. We venture across the room, and I launch into a discussion of time zones, standby lists, etc. I am fortunate that the wife understands fully. Her husband is relying on her reasoning skills to make this trip happen.

All flights were cancelled last night, so they went home to rest, while I tried not to think about the possibility that they were driving around in the foggy, dark, stormy weather. I imagine he drove & she navigated. The brawn and the brains had to work as a team. This morning I didn't see them, but hopefully with improving weather this man and wife will experience a flawless trip, much like myself.

So this brings me to my point. We take for granted the ease at which we can problem solve, shift gears and come up with an alternative. Airports can be pretty unfriendly, and I have seen some moments of terrible customer service when flying. I wonder how many elderly would report that flying is difficult for them? What might make it a more pleasant event? What services could benefit the aging population in the industry of travel?

Monday, November 29, 2010

Moments of Clarity

If you have participated in my presentations/courses you know that I am most often the last to give up hope. I am the one who says over and over again that we need to look for the moments of lucidity, and take full advantage of the times when our patients and loved ones with dementia are a resemblance of their former self. So today I saw it, again, firsthand. A woman who I’d basically written off, told her family she was not going to regain any of her thinking skills, and told all of the staff that the compensation system we had in place was all we could do, proved me wrong.

I saw her spark come back a couple of weeks ago, and to my dismay that light remains consistent even now. A few months ago, when I first met her, she told me that if I just gave her time she would feel better and recover. I persisted with therapy then, and I failed. She was correct. Now, it seems like she has shed about 10 years. Today we had a wonderful conversation. She laughed, smiled, and discussed her life with a precision and simplicity that made me know this was improvement. She also gave me some insight that was very valuable. Listen to your patients. Sometimes even when they seem off base and confused if we can listen to what they are truly saying, and realize that our goals and our time frame is not always what best suits them.

By leaving my preconceived notions behind and remembering that we all know ourselves better than any medical professional could, I am able to see the value in reading beyond the uncertainty of dementia. We have a responsibility to help our people live their best lives for as long as possible. How can we possibly begin to do that if we don’t use what they know to our advantage? Use their moments of clarity, find some resolution for yourself, and consider what we are here for. Reflect on our purpose of helping the elderly exist in a way that makes keeps life normal.

Sunday, November 28, 2010

Seniors and Holiday Woe


The holiday season can be extremely hard for many. I know that I tend to remember holidays of years past, long to be with my family, and miss loved ones who have passed on. I also have a real distaste for the commercial aspect and the mass amount of consumerism that plays into the holiday season in our culture. Not to mention that we lose focus on taking care of our physical self as we spend time running here to there, shopping, visiting, and experiencing the hustle and bustle. While I know that many people are inspired by the sights, the sounds, and the aromas. You have to admit that the amplified energy levels this time of year creates can be difficult, even for the most avid holiday enthusiast. Many factors come into play, sadness, loneliness, financial stress, time crunches, or sensory overload and they all take a toll.

Seniors are very susceptible to depression associated with the holidays. Just think about it from their perspective…

An elderly widow, we’ll call her Sue, lives at home alone and her children and grandchildren are coming to visit. This year Sue has been feeling less motivated to get prepared than ever. Maybe it’s because she is coming very close to that 80 year mark, or maybe it is just because she has recently stopped driving. Sue is worried that she won’t have all of the necessary food, presents, and amenities that her family is used to when they arrive for their traditional 4 day visit, but what could she have done, she has to rely on neighbors for a ride to the store, or she has to use the senior bus, and it is not easy to be prepared and remember all you need on the occasional bus trip. Plus the stores are so crowded and big that she can’t find anything. Her kids are bringing the dinner, they tell her not to worry about anything, but this makes Sue feel inadequate. Do they think she is not capable? What will be next, if she can’t drive and can’t cook dinner when will they decide she is too feeble to be alone? The last thing Sue wants is to have to move into one of those places for old people. They arrive, her kids, grandkids, a pet dog, they bring presents and food. Sue’s entire routine is changed. Sue is so grateful to have her family with her, happy they are willing to travel and share their time, but she is exhausted before they even arrive, and by the end of the visit, she feels like she could fall over from fatigue. Can you see how this might lead to the holiday blues? Can you see how Sue might have conflicted feelings as she is appreciative and thankful to have this time with her family, but she also is so out of her own routine that she begins to sense anxiousness and worry?

So what do we do?

The Mayo Clinic reports the top 3 triggers for holiday stress are relationships, finances, and physical demands. Sue is burdened by all of these. Many seniors are in this position, and even if they have no issues with money, even if their family takes care of every aspect of the physical load, everyone has to cope with the relationships (or lack thereof) which is an undercurrent of the season. So we need to simplify the whole process. Slow down. Focus on contact, interaction, and connection. Make the seniors in your life realize just how much love surrounds them during this holiday season.



































Sunday, November 14, 2010

November 16th: National Memory Screening Day


The Alzheimer’s Foundation of America is holding its annual National Memory Screening Day this upcoming Tuesday.

A screening is not a diagnosis, or in-depth testing, but a systematic way to look at areas of concern and determine if you or your loved one is at risk for dementia. It is also a great way to examine memory right now. Even if you are not having trouble the screen is helpful for future comparisons.

More than 2,000 locations nationally will provide the opportunity on Tuesday, November 16th for memory screening. Click on the link below for more detials.

http://nationalmemoryscreening.org/index.php

Take this opportunity and screen your parents’ memory, your grandparents’, and your memory. This valuable service could help for earlier diagnosis of dementia, and guess what…the medical treatment available right now for Alzheimer’s and other types of dementias is MOST EFFECTIVE in early stages. So why wait?

Wednesday, October 27, 2010

Too Old??


You are never too old to try something new…

A concept proven today as I watched a group of elderly men and women experience their first “Mexican Meal”. We planned for days, talked about the different foods served in Mexico, and all of my senior friends said that they were unsure of how it would turn out, but were willing to give it a shot. They filed in, with Pandora pumping mariachi music, and spirits high, the lunch preparation began. We had a blast stuffing tortillas and faces alike. Everyone loved their lunch and 75% of the people had never tried this type of cuisine. The comments ranged from “better than I thought it would be” to “a real treat”. My personal favorite was when I asked one person who happened to be hard of hearing if she was ready for a Mexican dance, and was met with the exclamation of “I don’t want any man, Mexican or not”. Hahaha. The laughs kept coming, our bellies were full, and we all thought the fiesta was a success!

New experiences keep us fresh. We all get stuck in the same old patterns, but let’s take a lesson from these kids and remember that you never know until you try.

Tuesday, October 26, 2010

Wednesday, September 29, 2010

Perils of Presenting


I did a guest lecture last night at Marshall University. My talk centered on dementia and the SLP’s role. A day later, it is interesting to reflect on that brief time I spent with the class. A little nervousness came over me, far different from my typical experience presenting. I am rarely nervous for an 8 hour day and room full of therapists, but this hour lecture to a few graduate students caused me to loose the timing and fluency that I have worked hard to perfect.

So after sleeping on it I realized what my deal was. I had a room full of people who were seemingly eager to hear what I had to say. Not your standard CE course with texting, passing notes to one another, (both distractors I have learned to tune out completely), but now I had the full attention of 25ish speech-language pathologists in the making. A very different audience that my norm. They were all fully aware, took notes diligently, and the amount of motivation in that room was overwhelming. That is a different sort of pressure than I am used to. The ladies’ passion and desire to take in all of the information they possibly could was refreshing, but also a bit nerve-racking.

I did however enjoy my time with that class and their eagerness was what I appreciated most. They had a look in their eyes, apparent excitement to learn, and thoughtful questioning. Their questions were more frank and to the point than I anticipated. I talked about dementia, how we can provide services throughout the stages, as well some of the reasons I love working with this population. As I started to wrap things up, two unanticipated questions came barreling at me. The first student asked if “I felt prepared for the work I do when I started in the field”, and I answered with honesty. Maybe I even laughing a little at the thought of feeling completely equipped at any phase, new grad or seasoned professional. I didn’t and still can’t be prepared for everything I encounter. The next student asked me if “I wanted to leave them with one thing what would that be?” Now this was the question I had not thought about, and I completely veered off topic. I told students not to box themselves in, not to underestimate what they can achieve, or how their skills might provide service. She probably wanted to know the gold standard for dementia treatment, but if you know me I tend to go beyond, and wanted to bestow a grander knowledge for life fulfillment J

It’s remarkable that we ended on such a note. I was completely out of my element for the evening, and feeling less than confident about it. My guidance to these students was to push the boundaries, and believe in their abilities. You know what? I think that is sound advice. I operate that way in my clinical practice, in my life, and my career. Hopefully the students saw it that way as well, and know that there is no cookbook, there is no right way to do it, or wrong way to do it. Life, work, treating patients, we just have to take what we know and apply it to the reality at that moment.

Friday, August 27, 2010

As Memories Slip Away


Just in case you missed NPR's Morning Edition this morning. I thought I'd share a link to the StoryCorps clip aired. This clip was recorded as part of the Memory Loss Initiative.

http://www.npr.org/templates/story/story.php?storyId=129454463

The Patterson's share what they have learned about living with Alzheimer's, and really living in the present moment. They hit on a key point for sure. Like Eleanor Roosevelt said...

Yesterday is history, tomorrow is a mystery, and today is a gift; that's why they call it the present.

Listening and Loving

Many of you may know of the work I am currently doing with StoryCorps. There will be many exciting projects to come, but today something special will happen. NPR will be airing a beautiful clip that was recorded as part of the Memory Loss Initiative.

This morning at 8:20 on NPR's Morning Edition tune in to hear why I think StoryCorps is so wonderful, and its value with those we care for suffering from memory loss or dementia.

I hope you will listen and let me know what you think.

Tuesday, July 20, 2010

Past and Present

Each day I work with people who have dementia. I talk with them. I ask them to communicate and converse. I ask them to remember. So many of my interactions with these people begin with observation, and more often than not they are unoccupied until I initiate contact. Once dementia gets to a certain point, the person appears to be “living in the past”, and their reality shifts away from the one in which we live. No wonder they seem disengaged, they are not living in the same realm as you and I. As their disease worsens, remembering becomes increasingly difficult. At this point, we often focus with our elders, on examining the memories still left intact. Precisely recalling life’s history is valuable, but let’s consider another perspective…
The most important piece of the puzzle may be that by talking about the past we are actually helping the person with dementia be present. They are in the moment, actively engaged in narrating their life. For a person with loss of thinking and communicating abilities, the act of interacting is more valuable than remembering accurate details of life. It is an amazing gift to provide this opportunity for a person who often lives within the confines of their own world/head. Take a moment and speak those you know who don’t remember well, who can’t converse easily, and remember that the success is in the experience not the result.

Thursday, June 24, 2010

Jan's Story

Last night I check my email to find a note from a person who attended one of my seminars. She referred me to last week's CBS Sunday Morning show, and simply stated that there was a segment I should see that was wonderfully done. I watched this video and was very touched. Barry Petersen when out on a limb, creating a relevant piece that is absolutely worth sharing.

Take a moment, click the link, scroll down, watch the video, and share your thoughts.

What if Jan's story was your family's?

http://www.cbsnews.com/stories/2010/06/20/sunday/main6600364.shtml?tag=cbsnewsTwoColUpperPromoArea

Thursday, April 29, 2010

10 Mountains 10 Years


They may not be moving mountains, but pretty close to it…

The Mountains
A small group of ordinary people, “ The Regulars” as they call themselves, are breaking new ground in awareness for Alzheimer’s and Parkinson’s Disease. Enzo Simone and his team of climbers are anything but regular. They are on a quest to summit 10 of the world’s most challenging and amazing mountains. Not only will they conquer the mountains, but also bring a level of unprecedented awareness to 2 horrible diseases afflicting over 92 million families in our country.


The Movie
10 Mountains 10 Years is a documentary feature film by Back Light Productions which chronicles the summit of Kilimanjaro with this group. The climbers make their way up the mountain and along the way receive inspiration, reading letters written by caregivers for those with Alzheimer’s or Parkinson’s. The film intertwines their climbing journey with medicinal accomplishments in fighting these diseases. All proceeds from the film go to medical research and caregiver programs. Check out the trailer. It is phenomenal!!


10 Mountains 10 Years Movie Trailer from Vancan Design Studio on Vimeo.


The Motivation
Optimism and inspiration resonate in Jennifer Yee’s (writer/director/producer) voice when she talks about the movie. She calls it an “underdog journey” which began with her friend’s project of climbing mountains to bring attention to Alzheimer’s and Parkinson’s, and with a “giant leap of faith” became 10 Mountains 10 Years. Their desire for the film is worldwide distribution, but not for the reason you may think. The motivation for staying with the movie for the long haul is according to Yee, “to make a difference with people, so they see there are others out there fighting for them…there is hope when maybe they have lost hope”

A few with a dream CAN make a difference…
Thank you to Back Light Productions and “The Regulars”, keep up the battle.

Sunday, April 4, 2010

Reminisce Resurrect


Easter Sunday, brings us to see our elders, a family dinner, baskets, eggs, church, a new dress or a nice suit. Easter sparks many memories for the neurotypical person like one of us. For instance, I can recall the exact shade of pink in the stripes on my dress one Easter, the scratchy knee socks, and the bright sun shining on my face while I posed for Easter photos in the nicely manicured lawn with my cousins. The patient with dementia will not have these memorable details easily accessible. So asking the person with memory and cognitive impairment about their favorite Easter, or what their Easter traditions are may be a great way to begin a conversation, without very fruitful discussion.


What we know about memory is that short term recall is the first to disappear, and then long term recall slips away more slowly. It manifests like this in the early stages…The person with dementia gets up and dressed in their Sunday’s best, the family leaves for church and no slip up yet. They go to service, sing the songs, read the scripture, and then time for family dinner. But this year family dinner is at the granddaughter’s home, and the driver is relying on the one with dementia to give directions, as he is in from another town. Travel there is not so easy, despite many visits prior to this one, wrong turns are made, even pulling into the wrong home, but thankfully noticing another family in the drive. Talking about the sermon this date is impossible, even though the person with dementia was present and participated during the service, no recollection of information so new exists. So, with a lack of interaction regarding current happenings, the family begins to dig back into days past. Reminiscing about the year that one lost egg from the hunt wasn’t found for a week, and only did the stench of the decorated egg lead them to find it. The person with dementia may remember this humorous event. Perhaps they break out the photo album. The senior with memory loss sees a photo of their children 20 years ago, outside the church after Easter, and with a quick comment from the daughter regarding the fun had that day, comments flow easily and memories though long lost begin surfacing.
Now how can we make this Easter, and everyday special? How do we help preserve memories and interactions in life while dementia is trying to take those skills away? Stick with tradition, and keep the events of the holiday as recognizable as possible. People with dementia will remember the familiar, and function optimally when provided with stimulation that is not constantly changing. Memory loss will often not attack the prayers that were repeated throughout life, the common routine of cooking the same recipe for the Easter ham will be intact, and even knowledge of the normal attire, or typical events of the day are tools to use to help the person with dementia live life as normally as possible. When it comes to remembering and conversing, use items and pictures from the past to elicit recall, and keep the demand simple. Allow the senior to recall what they easily can and keep the conversation flowing by feeding in missing details. Familiar smells, tastes, places, routines, and providing stimulus with emotional content will retrieve memories from places hidden.


Not only this Easter, or on special holidays, but everyday, we can draw from this knowledge to help those we love with memory loss have meaningful interactions. Keep routine intact, use familiar ritual, and pull in concrete items to stimulate memories and conversation. Fill the day with success driven interactions. We can tap into emotions, feelings of love, joy, and peace to promote pleasant contact with the senior suffering from dementia, and through these moments preserve quality of life in the face of a terrible disease.


Happy Easter!

Thursday, April 1, 2010

End of Life: So Many Questions

For years I have known the devastation that comes about when making decisions regarding death and planning for end of life care. When do you opt for treatment? When is it time to just live the rest of your life? When do we as clinicians, nurses, doctors, stop fighting to fix the problem, and resolve to lend a hand for finding peace? Throughout personal experience, encounters with families, and interactions with dying patients I have come to realize that there is no consistency in ensuring that a dying person’s wishes are conveyed and carried out. Extreme variability exists in discussions about dying and one’s end of life wishes. Talk about death is complicated, dealing with death is difficult, and when you add in factors such as multiple medical conditions that take away communication, thinking, or weaken the patient to a point of compromise, it becomes essential to start the dialogue long before the disease takes over.


In the last year or so this specific notion of dealing with death has crept into my life time and time again. First in multiple encounters of working with elderly patients with dementia, or some other illness, who did not “have their ducks in a row” so to speak, left families with critical choices on their plate. Many times a person will have laid out the basics, but when critical moments arise it is much more complicated, emotions of family member take over, not wanting to “lose” their loved one, etc. Resuscitate or don’t? Ventilator or none? Feeding tube or pneumonia? So many intricate questions crop up. Also, I have spent time talking with friends and members of my own family who don’t work in the medical field and they have dealt with similar issues. They ask for guidance from medical professionals, but find it lacking. All of these end of life determinations in the midst of an emotionally trying time. Hoping they will know the right thing to do, while keeping with the wishes of their loved one.


Wouldn’t it be nice if we talked about these decisions with the one who really is responsible for making the call long before the time comes?


The following is a guide designed to be used in conjunction with Bill Moyers’ PBS series On Our Own Terms.

http://www.pbs.org/wnet/onourownterms/community/pdf/discussionguide.pdf



Use with the series is beneficial, but the guide alone also serves as an superb resource for topics of conversation, decisions to be considered, suggestions for dealing with death, and even how to make sure our needs are thoroughly document so no confusion arises.


Initiate the conversations and listen intently. Learn how your parents, grandparents, spouses, and patients what to live out their last months and days, and how they want to die. In spite of a distressful event, you won’t be sorry.

Friday, March 26, 2010

Healthcare Reform


No matter which side of the fence you fall on, it is important to attempt to get some unbiased knowledge about just what health reform will mean. So much of what we hear in the media is distorted. With the important issue of obtaining health care for elderly loved ones, our families of all ages, and ourselves, it is absolutely necessary to find some objectivity and review the facts.



The Kaiser Family Foundation does a nice job of reporting information without inserting opinion. This type of resource is hard to locate regarding a topic which holds so much political charge. KFF also provides updates frequently so you may want to bookmark this site as well.






Wednesday, March 17, 2010

95 and Counting


We started the conversation talking about specific memories this elderly woman wanted to share. She prefaces our discussion with a statement that, in her mind, sums it up. With a high pitched voice, and rich Appalachian dialect Mary tells me, “Things just don’t come back to you like you’d think they would. Ain’t got much memory. I’ve about forgot it all.” Then she defies all she just said and remembers her story. Detailing life as a young woman, a wife, a mother, a farmer, she talks of days in her life before the nursing home, days before, as she says “my bones started to give out”. This petite elderly lady with long, wavy, barely gray hair holds the information of what life has been like for nearly a century. I am fortunate enough to get a slight glimpse into the mind of a woman who has experienced nearly a 100 years of change, and hear her talk about the transformation and the constant aspects of life over the years.


Mary tells me “I remember the milk cows, sheep, goats, hogs, a team of horses, and things like that. That is what took up my time. That is what I know. I knowed how to plant corn, potatoes, all kinds of little things in the garden. That is what took up your days.” She recalls more in-depth stories of tending her garden, helping her animals, herding them in to shelter when weather turned bad, and staying up into the midnight hours to make sure the baby animals, lambs in particular, were saved from the fate of freezing to death. She tells me of her childhood as an orphan, as her parents died and left 9 children, to “manage the best they could”, when Mary was not yet a teenager. She can’t recall her exact age, but tells me that she was pampered as she was not one of the oldest. Her face and words reveal shock when I tell her that average life expectancy in the United States is 77.7 years. Her family did not live this long and she feels like she is the exception.


Speaking easily of the days of past she recounts events in her life, but tells me that around the time her great-grandchildren came along there “must have been something happened to my mind”. She explains that currently, “It is hard to concentrate and sometimes I get scared because I am confused about where I am.” This happens most often when she wakes up at night, and she is able to “get straightened out” once she fully wakes. She regretfully tells me “If you’ll notice, I can’t tell you anything of benefit.” But what Mary fails to realize is that her presence, her story, the wisdom gained in her years are of benefit to us all.


What I see when talking to Mary is a person whose brain is in very good shape after 95 years of hard work, living, and thinking. She has normal age related memory change. Precise details are decreased, and the particulars of events happening in present day tend to fade more quickly. When I ask her to let me in on the secret to living such a long and fruitful life she explains how she took care of her body, working hard and walking a lot. I learn that they never called it exercise, as activity was just a way of life. I posed a question to Mary that required a bit of thought on her part, as it would for anyone. I wanted to know the best and worst thing about being a woman 95 years of age. The best, she tells me, is being able to “eat all you want because nobody pays attention if you need to trim up”. This statement, coming from the smallest woman I’ve ever met, reveals a great deal about how some components of our belief system and self image, deeply ingrained, carry throughout the span of our lives. The worst thing is a concept she can’t quite put her finger on. She simply states “I’ve lived through it all and there’s not much use to try and sort it all out, I am just here and that matters.”


Mary is very kind, beautiful, and grounded. When speaking of tomorrow she tells me in a quiet voice “The future will take care of itself. I like to be where I am and not waste the day with worrying about tomorrow.” This is how she has lived her 95 years. Her story is intact, the important parts, her ties to the past remain, but today is where she stays.


Cheers to Mary.

Sunday, March 14, 2010

Meds and Memory Improvement


A body of evidence exists discussing a positive secondary effect of antidepressant use. Hippocampus cell growth is the result which comes as a byproduct. The hippocampus is a structure within the brain which stores memories systematically. Typically examined in those with long term depression, studies show that with use of antidepressants over extended periods of time, hippocampus cells proliferate and increase in plasticity. If the hippocampus cells are generating, or even if the plasticity is allowing new information to be stored and retrieved, then implications could be profound.

The use of antidepressants can be very beneficial for the elderly and those with dementia, for decreasing depression, but perhaps there is an additional benefit. Wouldn’t it be amazing if we could kills two birds with one stone, or at least slow down the migrating flight of memory loss throughout the fragile brains of those with dementia, Alzheimer’s, or normal age related memory impairment.

Now I have to say that doctors do not prescribe antidepressants for this purpose, and research is virtually nonexistent in hippocampus volume increase with the population whose diagnosis is that of a memory disease such as Alzheimer’s. What’s available is the promise of clinical trials related to this concept. Here is a link to one such trial, and this site will provide a tool to find other trials as well that may benefit our patients and loved ones with dementia.
http://clinicaltrials.gov/ct2/show/NCT00702780?term=Alzheimer%27s+and+antidepressant&rank=12

More than a clinical trial, the promise or hope that perhaps a treatment we use for one symptom, depression, will change the brain with memory loss in a positive way may provide solace in the face of a very challenging disease.
Photo By: Tom Varco

Friday, February 26, 2010

Here's the Way to Grow Old Together

I love this! This is how we should age. It warms my soul to watch this couple. Now I just have to convince my husband to practice a routine of some sort so we can perform together. I'm leaning towards dancing. Enjoy.

http://www.youtube.com/watch?v=RI-l0tK8Ok0

Tuesday, February 23, 2010

Lesson Learned

Sometimes we find a new outlook in an unexpected place.

I had a recent bout with the drug Topamax, a seizure medicine used to manage migraines in adults. This medication made me completely stupid. The neurologist said “it might cause some mild problems with word finding”. Obviously this doctor had never taken Topamax. In the beginning it felt as if I was living in a fog, it was very difficult to process information. Side effects forced me to adapt and cope, all in hopes that the head pain, the dizziness, nausea, and sickness, would go away if I used the medicine. The worst part was the long lasting result of word finding difficulties. As a speech pathologist I rely on my words. I teach people to talk and give seminars for a living. Seriously, words have to come quickly, flow easily, and nothing less is tolerable. My patients have these symptoms, not me. The meds were in my system for almost 4 months, and then I decided the side effects were too much. I was fortunate to have the luxury of being allowed to make that decision. My patients do not have the ability to stop their symptoms.

I stumbled upon an abundance of insight because of this experience. Even in the midst of my migraine and medication provoked stupor I gained a new understanding for the people I encounter each day. These people have dementia often in early stages, some highly aware of the tribulations they face, others beyond that awareness, but at times, still frustrated with changes in their thinking, slowed cognition, lack of ability to express themselves. For the first time I held a fresh perspective. The embarrassment, the lack of desire to speak, the tendency to avoid specific situations, was a problem I now faced. I love being a presenter, but I dreaded every seminar I had to give, certain there would come a time during the day long event that I would make a joke about my lack of appropriate word retrieval. I am lucky to be able to make these symptoms go away. Just stop taking a pill. Dementia does not forgive so easily. The people I meet, do therapy with, and talk to, tell me that the symptoms are relentless, frustrating, and almost impossible to deal with.

The journey of Topamax allowed for a shift to occur in me. I’ve always believed that dementia was a terrible disease but now I had a small taste, very small, not even comparable, off its manifestations. I did not like it, and could not accept it. A deeper respect for those suffering from dementia lies in me now, and I wonder what life will be like as I age.

Please feel free to comment about your own experiences that occur regarding aging, or other thoughts you may have.

Thursday, February 11, 2010

Just a Phone Call Away




Last week I conducted a seminar in Tucson, AZ and had a great conversation with a course participant. This lady spoke with me about some of her greatest concerns caring for her elderly parents. She told me that the mother was in her late 80s and father in his 90s. They live at home and their children assist with their care. The adult children want their parents to have as much independence as possible, consistent with the aging in place movement we are in the midst of.

The lady expressed concern with use of the phone. What comes to mind initially? Large buttons due to eyesight problems, poor hearing interfering with comprehension of the conversation, both possibilities, but neither fit the bill. The main worry was the automated system that we all encounter. Even those of us whose brains are in our prime experience frustration, and at times just want to push 0. We hope that a person, a real live voice will help us with the problem. Think about the tribulations that may complicate the automated system phone task even further. Poor working memory… by the time “push option 7 for billing questions” comes along, the elderly person with memory loss will forget what assistance “option 2” might provide. Then they try to get the operator, instinctively touching the 0 button on the phone, and what do they hear “this is an invalid option, goodbye”, and back to square one.

In our world of evolving technology where paper bills are a thing of the past, customer support provided by a human being becoming obsolete, and the first thing we hear when calling customer service is redirection to a website, we must consider the generation who is not familiar with this system. How about a default option, 0 for operator, required for all customer service centers? Although the companies would have to employ more people increasing their costs, certainly it would be less expensive than providing services for the elderly at home to assist in maintaining personal finances. Perhaps someone could start a customer service company, a call center, and its primary function would be to service the aging population. They could then contract to utility companies and customers over a certain age would receive an alternate number to call, the ones who most need help would now have a better option. I don’t know of a quick fix. I think we have to look at changing the system on this one, but what a difference a simplified version of the complex customer service phone methods could make in the lives of our elderly and their caregivers.

Sunday, January 24, 2010

Depression: Let’s Consider the Impact


My lunchtime routine goes something like this; consume food and beverage, visit with co-workers or seminar participants, and then the multi-tasking begins, I check email, TMZ updates (a guilty pleasure I know), and Medscape updates for new articles. This past Thursday in the midst of my daily ritual, a title catches me off guard. “Patients With Newly Diagnosed Dementia May Become Suicidal” are the black, bold type words that make me look twice. My first thought, not one of shock or surprise because I know depression is an expected reaction to a diagnosis of dementia, if one knows anything about the disease. Problem was, I had not seen it in such stark terms, suicidal, newly diagnosed, and suicidal in early stages of dementia. I keep thinking. These are people functioning at a high level, able to execute the suicidal plan if not treated and if so desired. So, I touch the link, read the summary provided by Medscape, research and read the entire article.

Basically, a literature review identifying patterns of increased suicidal thought reports and requests for euthanasia in patients with a recent diagnosis of dementia. The article suggests that protocols be established to identify, treat and monitor for significant depression and suicidal risk. They also suggest modifying thought patterns of the medical community and the concept that depression of this severity, with this population, is not a concern.

Depression is significant, and diagnosis can be difficult in a patient with dementia for many reasons. Overlap exists in behavioral changes seen with progression of dementia and depression, i.e. loss of appetite, weight increase or decrease, varying sleep patterns, poor concentration, loss of interests, apathy, decreased concentration and attention, indecisiveness, fatigue, loss of energy, restlessness. Difficult or not, diagnosis is important or as we just read, effects are significant. If everyday, people with dementia walk around thinking of suicide, and request to be euthanized we have to alter our view on depression and be more aggressive with its identification.

Regardless of the cause of dementia there is self-awareness in the onset of the disease of functional abilities changing, and the core of that person shifting. Initial awareness of difference and decline is a key factor. Depression is likely to occur. As the patient looses the ability to recognize their own decline, depression may or may not lessen. I am a big believer that awareness and orientation is inconsistent. We do not know specifically which parts of the brain have been destroyed or preserved, so we have to be cautious. When I talk with people who have dementia it is likely, at times, a moment of clarity will shine through. I see that person searching and grasping for reality and knowing that they are not living in it. That must be a scary place in which depression hides in the corner and waits for that prime moment to assault. The person with dementia will have difficulty grasping the abstract concept of depression as their disease worsens, and describing it as language breaks down. I mean, even the normal, non-cognitively impaired person often has a hard time putting their symptoms of depression into words, and understanding why they are experiencing the behavioral changes that occur with depression.

Let’s all begin to pay closer attention to those we care about who have dementia. At the beginning, recognize the fragility of mental state, know that essentially this person’s concept of what life would be like in old age has, in an instant, changed forever. As deterioration occurs, keep in mind that the dementia may cause behavioral symptoms, but depression can exacerbate these. Depression is not just possible, but probable. Talking to physicians, openly, about concerns as soon as they occur, and looking at all options to manage depression will make a difference. I am taking a proactive approach with the people I know who have or care for someone with dementia. I am going to warn them of the severity of depression’s impact on well being, especially when life already presents the challenge of dealing with dementia. I will advocate for quick diagnosis of depression which left untreated, may likely have devastating effects.
Photo by Chalmers Butterfield

Tuesday, January 19, 2010

What is it?

Dementia, not a pretty picture… Typical progression of the disease includes a decline in cognitive function, memory, communication, physical abilities, to the point that the person living with dementia is unable to care for themselves. So, first we see the thinking fade away, recent memories, then those from days past, problem solving skills, attention, and communication. Then this horrific disease attacks a person’s physical being. As if the war on their mind was not enough, they lose coordination, vision disturbances occur, senses change. In the end, it all goes, the person with dementia cannot tell you want they want and need, cannot remember who they are or where they are, cannot walk, feed themselves, use the bathroom on their own, and then goes the ability to swallow, something as basic as eating and drinking become physically impossible. As I said, it is not a pretty picture.
What I know, and see everyday, is that people are living with dementia. The CDC says that as many as 5.3 million American’s are living with dementia caused by Alzheimer’s disease (which is responsible for over half of the cases of dementia). What I also know is that our population is aging, and these numbers are growing exponentially. Now the question is what do we do with this fact? How will we care for all of these people as they age? How will we prepare their families to cope with dementia? We need to start the conversation now. Knowledge is power. The more people know about this disease the more empowered they (or we) will be to kick it!